BWH NICU Follow-up Program

The NICU Follow-up Program at Brigham and Women’s Hospital provides a comprehensive team-based approach to the outpatient care of infants and children at risk for developmental delay or ongoing medical problems. We regularly assess and support a child’s developmental progress and overall health as well as provide guidance about:

  • Growth and nutrition
  • Ongoing medical conditions
  • Feeding difficulties
  • Parental mental health

NICU Follow-up Program Video

Jennifer Benjamin, MD, Department of Pediatric Newborn Medicine, describes the NICU Follow-up Program at Brigham and Women's Hospital. The NICU Follow-up Program is a comprehensive, multidisciplinary, outpatient clinic for infants and children who are at risk for ongoing medical or developmental complications following a stay in the NICU.

Our Team

The NICU Follow-up Program is led by Jennifer Benjamin, MD, a neonatologist with additional training in the outpatient care of high-risk infants. She is joined by Carmina Erdei, MD, a neonatologist and developmental-behavioral pediatrician with expertise in developmental disorders affecting toddlers and older children, including autism. 

Our multidisciplinary team also includes the following care providers:

  • Clinical Psychologist – performs standardized neurodevelopmental testing and provides feedback and recommendations based on results.
  • Dietitian (nutritionist) – assesses child’s growth parameters and feeding practices and provides feedback and recommendations.
  • Physical Therapist – assesses child’s physical development and provides feedback and recommendations.
  • Speech and Language Pathologist (feeding therapist) – assesses child’s feeding skills and provides feedback and recommendations.
  • Practice Assistant – schedules appointments, coordinates referrals and prior authorizations, assists with care coordination across subspecialties.
  • Psychiatrist (available as needed) – performs screening evaluations for parental mental health concerns (ex. depression, anxiety, post-traumatic stress disorder).
  • Social Workers (available as needed) – assesses needs and provides support and/or recommendations.
NICU Follow-up Program Team and Patients

Multidisciplinary Team

The NICU Follow-up Program provides a comprehensive team-based approach to the outpatient care of infants and children at risk for developmental delay or ongoing medical problems.

Our Patients

We evaluate and treat infants and children with a range of medical and developmental conditions, including:

  • Prematurity
    • born at less than or equal to 32 weeks’ gestation or
    • birth weight less than 1500 grams or 3.3 pounds
  • Growth, feeding or swallowing difficulties
  • Cardiopulmonary conditions, including:
    • chronic lung disease/bronchopulmonary dysplasia
    • persistent pulmonary hypertension
    • home on oxygen
  • Neurologic conditions, including:
    • intraventricular hemorrhage
    • seizures
    • stroke
    • meningitis
    • hydrocephalus
    • infants or children who have received whole-body cooling
  • Congenital anomalies or congenital infections
  • Neonatal abstinence syndrome
  • Other complex medical, surgical, or developmental conditions

Our patients may have graduated from the NICU at Brigham and Women’s Hospital or may be referred from a different hospital or community care provider.

What to Expect During Your Child’s Visit

We typically see infants and children every four to six months throughout childhood, beginning two to four weeks following hospital discharge, until the transition to preschool (around age three).

  • The first visit is usually scheduled before your child leaves the hospital, but you or your child’s medical provider may call for an appointment.
  • The schedule of visits is tailored to your child’s needs and may change over time.
  • Every visit includes a medical and neurodevelopmental evaluation. Depending on your child’s age and specific needs, additional evaluations by other team members may occur.

The team members will review the results of your child’s evaluation and provide you with feedback and ways to best support and enhance your child’s development. A letter with results and recommendations will be sent to your child’s pediatrician and Early Intervention provider.

Because your child is seen by several providers in the same visit, you may expect the visit to last two to three hours in total.

Contact the NICU Follow-up Program

Contact Us

Center for Child Development
221 Longwood Avenue, Boston, MA

Appointments and Information:
(617) 525-4120
nicufollowup@bwh.harvard.edu

Why Should My Child Attend the BWH NICU Follow-up Program?

  • Multidisciplinary, team-based approach allows areas of difficulty to be addressed by several providers in a single visit;
  • Regular monitoring allows opportunity for intervention at an early timepoint to achieve the best long-term outcome;
  • Identify need for additional subspecialist evaluation;
  • Assistance with referrals and care coordination among specialists;
  • When applicable, participation in clinical research studies allows improvements to medical care provided to future high-risk infants.

Program Location and Contact Information

Our team sees patients within the state-of-the-art Center for Child Development at 221 Longwood Avenue, in Boston, MA.  Our newly renovated space is developmentally focused and offers numerous features beneficial to infants, children, and their families. Valet parking is available and wheelchair access is provided.  We are located on the first floor.

Appointments and Information: (617) 525-4120 or nicufollowup@bwh.harvard.edu

Michalia Root, Practice Assistant: (617) 525-4120

Jennifer Benjamin, MD, Director: (617) 732-6371

LEARN MORE ABOUT BRIGHAM AND WOMEN’S HOSPITAL


For over a century, a leader in patient care, medical education and research, with expertise in virtually every specialty of medicine and surgery.

About BWH