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Roadmap Series – Information on Dementia Diagnosis, Research Participation, Caregiving and Prevention
The Outreach, Recruitment, and Engagement core at Brigham and Women’s Hospital has prepared a series of booklets to provide patients and caregivers with more information about Alzheimer’s research and the resources available to them.
Alzheimer’s Association (National)
The Alzheimer’s Association website is probably the best place to start your search for more information. This site provides information on diagnosis, treatment, and research and includes many resources for patients and caregivers.
Alzheimer’s Association (Massachusetts and New Hampshire Chapter)
The local branch of the Alzheimer’s Association provides a list of upcoming community events and information about local caregiver resources and research opportunities.
Alzheimer's Foundation of America
A national consortium of organizations working to further Alzheimer's education and advocacy. AFA's toll-free hot line provides information, counseling, and referrals to community resources.
The Alzheimer's Project
A four-party documentary produced by HBO and the NIA featuring CART's Dr. Reisa Sperling. Watch the full program online.
Alzforum: Alzheimer Research Forum
An online scientific knowledge base providing in depth reports on the latest Alzheimer's research.
Alzheimer’s Disease Education and Referral Center (ADEAR)
General information on treatment, research, and caregiver resources from the National Institute for Aging, including an information and referral hotline, a bibliographic database, multimedia resources, and an easy-to-read “Understanding Alzheimer’s Disease” guide.
Caring for a Person with Alzheimer's Disease
An easy-to-use guide for caregivers from the National Institute on Aging
National Alliance for Caregiving
National Family Caregivers Association
The New Old Age Blog at The New York Times
A New York Times blog about aging, health, finances and relationships between parents and the adult children caring for them.
Well Spouse Foundation
Resources for spouses and partners on caring for a chronically ill and/or disabled spouse/partner coping and survival skills, which includes an on-line chat forum for spousal caregivers
Alzheimer's Association Trial Match
Alzheimer's Association Trial Match is a free service that makes it easy for people and families with Alzheimer's to locate clinical trials based on personal criteria (diagnosis, stage of disease) and location.
National Institutes of Health (ClinicalTrials.gov)
Searchable listings offer up-to-date information on clinical trials for a wide range of diseases and conditions. Provides information about each trial's purpose, who may participate, locations, and contact information.
Medline Plus-National Library of Medicine
Provides an interactive tutorial on clinical trials.
Food and Drug Administration For Consumers: Clinical Trials and Drug Development
Provides a detailed overview of clinical trials, including questions to ask when considering participating in a trial. Available in Spanish.
American Bar Association Commission on Law and Aging
740 15th Street, NW
Washington, DC 20005
National Academy of Elder Law Attorneys
Searchable database of elder law attorneys.
1604 North Country Club Road
Tucson, AZ 85716
National Senior Citizens Law Center
1101 14th Street, NW, Suite 400
Washington, DC 20005