A PEN-PAL REQUEST
An EPP Mom would like to hear from other EPP people - patients or parents - by e-mail. She can be reached at jiglesias@buckleyfirm.com
MORE COPING TIPS
Tanning Beds. It has recently been reported in medical journals that the use of tanning beds can lead to the development of not only ordinary skin cancer, but also malignant melanoma, a very serious form of skin cancer. The danger seems to be greater the younger you are, and the fairer your skin is. So, as we have said before, if you find that tanning your skin - either with natural sunlight or with the use of a tanning bed (either at home or in a suntan parlor) gives you protection against EPP symptoms, be sure to visit your dermatologist at least once a year (or more often if they suggest it) to have your skin checked for the earliest stages of skin cancer. If caught early, skin cancer can be cured. Tan your skin only during the seasons in which you are sun-sensitive - if you are not sensitive to winter sun, resist the temptation of inducing a tan just to look great - the more you use the tanning bed, the more likely you are to get into problems.
Protective Clothing. An EPPREF member sent us the names of some companies which make sun-protective hats - their web pages are worth looking at. Although these hats are aimed at sunburn ray protection, if they produce a shaded area, they should work for EPP people. They are worth a try, though we can’t guarantee them.
The following pages are not maintained by Brigham and Women's Hospital. We are not responsible for any information found on them. Brigham and Women's Hospital provides this information as a convenience to users and does not endorse any products or services.
Tilley - www.tilley.com
Watership Trading Companie - www.watershiphats.com
Sun Stuff - a good selection of different styles. www.wearsunstuff.com.
Sun Precautions - we’ve mentioned them before - they offer a wider selection of clothing types than the above 3 companies. Their web address is www.sunprecautions.com.
So that’s the news - don’t hesitate to send us any coping tips you have developed that work for you, and we’ll pass them on.
Contact EPPREF: by phone: 617-525-2249
by e-mail: mmmathroth@bics.bwh.harvard.edu
The Usual Reminder: don’t forget to send us your forwarding address when you move, if you want to continue to get EPPREF NEWS.
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