Information on EPP for Patients and Physicians
A summary of the diagnosis, management and treatment of EPP.
Information on MedicAlert for EPP Patients
It is a good idea to be part of the MedicAlert system, because EPP people should be protected from the strong lights present in operating or emergency rooms and because of the need to avoid medications which slow down bile flow. This section contains information you should send to the MedicAlert group.
EPPREF News
A semi-annual newsletter from Erythropoietic Protoporphyria Research and Education Fund.
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