Lymphangioleiomyomatosis (LAM) Research Protocols and Participation

LAM Tissue Repository

The Center for LAM Research and Clinical Care, at Brigham and Women’s Hospital (BWH), in Boston, MA is looking for women with lymphangioleiomyomatosis (LAM) to donate blood and urine for research in LAM and tuberous sclerosis complex (TSC). If you agree to participate we will collect your blood and urine samples at BWH. We will also ask you about your medical history.

Your samples will be stored in a tissue bank and made available to researchers, within and beyond the Partners’ Healthcare System, who have obtained approval for research in LAM and TSC. We hope that the research these samples generate will help us to better understand LAM and TSC, and lead to the development of new diagnostic tools and treatments for both diseases

How can family and friends get involved?

Healthy Women Needed for LAM Research

The Center for LAM Research and Clinical Care, at Brigham and Women's Hospital is looking for healthy women to donate a blood sample for comparison in research in lymphangioleiomyomatosis (LAM). This research may help increase our understanding of the LAM disease and develop new therapies for LAM.

If you are a woman:
● Between 18 and 50 years old ● Do not have LAM or Tuberous Sclerosis Complex ● Have never been diagnosed with melanoma

You may be eligible to participate. If you agree to participate you will be asked to have a blood sample (approximately 1 teaspoon) collected at Brigham and Women's Hospital, Boston, MA.

For more information about research opportunities or if you would like to participate, please contact:
Betsy Peters, BSN, RN
LAM Research and Clinical Coordinator
P: 617-525-9331
F: 617-732-7421

 

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