End-stage lung disease is the most severe form of a lung disease. When a specific lung disease progresses to the point that lung function is seriously compromised, the disease is considered "end-stage." Most patients are diagnosed with a specific lung disease long before it progresses to end-stage.
Lung Transplant
A lung transplant can be an option for some patients with end-stage lung disease. The Lung Transplant Program at Brigham and Women's Hospital (BWH) offers single and bilateral (double) lung transplantation for appropriate candidates with a variety of end-stage lung diseases, including:
Learn more about lung transplantation.
Oxygen Therapy
If you do not have enough oxygen in your blood, you may need supplemental oxygen. Devices are available that deliver pure oxygen to your lungs. Many devices are small, portable and convenient to use.
Read more about the benefits of oxygen therapy.
Symptom Management
You can help manage the symptoms of end-stage lung disease by:
- Quitting smoking and all tobacco products
- Avoiding any known irritants that may cause lung inflammation
- Getting an annual flu and pneumonia vaccine
- Preparing for emergencies and periods of exacerbations
- Meeting with your healthcare team frequently to monitor your health
- Receiving emotional support through therapy or support groups
- End-of-Life Care for End-Stage Lung Disease
It is important to discuss your end-of-life wishes with your healthcare team and family. Your plan may include palliative and hospice care to help manage severe symptoms.
The Palliative Care team at the Brigham includes physicians, nurse practitioners, social workers, clergy members and a personal case manager to manage pain and other symptoms, as well as promote open communication about care. The Partners HealthCare Bridge to Hospice Program
What You Should Expect
When you become a patient, our team of experts will develop a personalized, multidisciplinary care plan based on your disease and current research. Your health will be closely monitored and managed to slow the disease progress and alleviate symptoms. You will also have access to patient support groups.
Multidisciplinary Care
Collaboration between pulmonologists, thoracic surgeons, physical therapists, social workers, nutritionists and dedicated nurses provides comprehensive, expert care for patients who have end-stage lung disease. Our multidisciplinary team members are recognized experts and have created one of the most advanced programs in the country for end-stage lung disease.
Appointments and Locations
Resources
Visit the Kessler Health Education Library in the Bretholtz Center for Patients and Families to access computers and knowledgeable staff.
Access a complete directory of patient and family services.
