Lymphangioleiomyomatosis (LAM) is a rare, progressive lung disease that mostly affects young women. It causes severe cystic destruction of the lungs, leading to shortness of breath, lung collapse and fatigue. Though LAM does not have a cure, amazing progress has been made in research and patient care. Learn more about Lymphangioleiomyomatosis (LAM).
The Center for LAM Research and Clinical Care at The Lung Center at Brigham and Women’s Hospital’s (BWH) provides comprehensive, specialized treatment and management of LAM, along with the most up-to-date research and access to clinical trials. A collaborative venture between experts in pulmonary and critical care medicine, thoracic surgery, urology, GYN oncology, dermatology, psychiatry, obstetrics, reproductive medicine, imaging, nutrition and lung transplantation, the LAM Center addresses the diverse needs of women with this rare disease.
We partner with the Herscot Center for Tuberous Sclerosis Complex at Massachusetts General Hospital. Care is personalized with in-depth diagnostic testing, detailed disease management and ongoing communication with referring physicians.
How do you innovate care?
Brigham and Women’s Hospital is the site of the nation’s leading genetic and pulmonary LAM research lab. Here, our physician-scientists investigate causes of the disease and fast-track research discoveries directly to patient care. We serve as a global educational network, educating patients and the medical and scientific communities about LAM.
The Center for LAM Research and Clinical Care concentrates and aggressively catalyzes multi-disciplinary research and globally-renowned clinical expertise in order to accelerate the pace of LAM research. Our aim is to ensure that treatments reach patients faster. Learn more about The Center for LAM Research and Clinical Care Tissue Repository.
Learn more about LAM Center for Research and Clinical Care.
How do I make an appointment?
Call The Lung Center at 1-844-BWH-LUNG (1-844-294-5864) to make an appointment with the Center for LAM Research and Clinical Care or request an appointment online.
Access information about appointments for new patients.
I'm a physician. How do I refer a patient?
Referring physicians can call 1-844-BWH-LUNG (1-844-294-5864) to refer a patient to the Center for LAM Research and Clinical Care.
Learn how your patients can participate in clinical research.
For a remote specialty consultation, link to Online Specialty Consultants.
Center for LAM Research and Clinical Care Team
For Mass General Brigham Providers
Physicians who are part of the Mass General Brigham network receive access to consultations with Elizabeth "Lisa" Henske, MD, during regularly scheduled pulmonary follow-up appointments and for leading-edge information on current basic/translation/clinical research initiatives in the LAM community.
Also, you will have access to support services as you manage your LAM patients; these services include but are not limited to care coordination support, subspecialty consultation with thoracic surgery, urology, GYN, GYN oncology, reproductive medicine, psychiatry and nutrition.
Where are you located?
The Lung Center is located at Brigham and Women’s Hospital at the 15 Francis Street entrance. Pulmonary and critical care medicine, thoracic surgery and thoracic imaging are adjacent to one another, making accessibility and appointment scheduling seamless.
