BWH Center for Child Development and Lactation

The NICU Follow-up Program at Brigham and Women's Hospital provides a comprehensive team-based approach to the outpatient care of infants and children at risk for developmental delay or ongoing medical problems. We regularly assess and support a child's developmental progress and overall health as well as provide guidance about:

• Growth and nutrition
• Ongoing medical conditions
• Feeding difficulties

Our Patients

We evaluate and treat infants and children with a range of medical and developmental conditions, including:

• Prematurity
  • born at less than or equal to 32 weeks’ gestation or
  • birth weight less than 1500 grams or 3.3 pounds
• Growth, feeding or swallowing difficulties
• Cardiopulmonary conditions, including:
  • chronic lung disease/bronchopulmonary dysplasia
  • persistent pulmonary hypertension
  • home on oxygen
• Neurologic conditions, including:
  • intraventricular hemorrhage
  • seizures
  • stroke
  • meningitis
  • hydrocephalus
  • infants or children who have received whole-body cooling
• Congenital anomalies or congenital infections
• Neonatal abstinence syndrome
• Other complex medical, surgical, or developmental conditions

Our patients may have graduated from the NICU at Brigham and Women’s Hospital or may be referred from a different hospital or community care provider.

What to Expect During Your Child’s Visit

We typically see infants and children every four to six months throughout childhood, beginning two to four weeks following hospital discharge, until the transition to preschool (around age three).

• The first visit is usually scheduled before your child leaves the hospital, but you or your child’s medical provider may call for an appointment.
• The schedule of visits is tailored to your child’s needs and may change over time.
• Every visit includes a medical and neurodevelopmental evaluation. Depending on your child’s age and specific needs, additional evaluations by other team members may occur.

The team members will review the results of your child’s evaluation and provide you with feedback and ways to best support and enhance your child’s development. A letter with results and recommendations will be sent to your child’s pediatrician and Early Intervention provider.

Because your child is seen by several providers in the same visit, you may expect the visit to last two to three hours in total.

Why Should My Child Attend the BWH NICU Follow-up Program?

• Multidisciplinary, team-based approach allows areas of difficulty to be addressed by several providers in a single visit;
• Regular monitoring allows opportunity for intervention at an early timepoint to achieve the best long-term outcome;
• Identify need for additional subspecialist evaluation;
• Assistance with referrals and care coordination among specialists;
• When applicable, participation in clinical research studies allows improvements to medical care provided to future high-risk infants.

Program Location and Contact Information

Our team sees patients within the state-of-the-art Center for Child Development at 221 Longwood Avenue, in Boston, MA. Our newly renovated space is developmentally focused and offers numerous features beneficial to infants, children, and their families. Valet parking is available and wheelchair access is provided. We are located on the first floor.

Appointments and Information: (617) 525-4120 or nicufollowup@bwh.harvard.edu

Kristen Sullivan, Practice Manager: (617) 525-4120