Lung Transplant Patient Resources and Support

Patient and Family Support

The Brigham and Women’s Hospital (BWH) Lung Transplant Program includes a dedicated social worker and financial coordinator. In addition to providing valuable assessments during your evaluation for transplant, these team members can provide you with information related to available resources, fundraising opportunities, and other assistance with the psychological and financial demands of transplantation.
Our social worker also leads a monthly support group for patients involved in the lung transplant process.

Please visit our Support Group page for schedule information, live webcasts, and prior support group videos.

Patient and Family Education

Lung Transplant Overview

A comprehensive overview of lung transplantation at BWH is available through our Lung Transplantation: An Introduction patient education video and our BWH Lung Transplant Guide for Patients and Families (PDF).  

Patient and Caregiver Experience Video

Our Patient and Caregiver Experience video shares the experiences of several of our post-transplant patients and their families.

Waiting List Guide

Our Lung Transplant Waitlist Handbook (PDF) is designed to help patients fully understand what to expect while waiting for a transplant.

Post-Transplant Education

Post-transplant Diary
All new lung transplant recipients are provided with a post transplant diary after surgery.  Patients are required to review the diary daily so that they have a good understanding of post-transplant management and expectations.  The diary also includes log sheets for documenting vital signs, medications, exercise, blood sugar and drain output.  The patient's support team members are also required to review the diary prior to the face to face education session that will be scheduled with the Transplant Nurse, Pharmacists and Nutritionist.  You can view or download the diary by selecting the link above.

Post-transplant Video Education Series
In the following video series, our nurse practitioner, Valerie Durney, provides patients and families with important information about post-transplant care that can help: improve compliance, improve outcomes, and improve patient and family satisfaction.

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