Kidney Transplant – Useful Links

Below are some resources that may be helpful to you as you consider kidney transplantation.

• United Network of Organ Sharing (UNOS)
  UNOS is the private, non-profit organization that manages the nation’s organ transplant system under contract with the federal government
• Transplant Living
  Developed by UNOS, content for the Transplant Living website is designed to educate about organ transplant and support the relationship between a patient and physician
• New England Donor Services (NEDS)
  New England Donor Services is the federally designated, non-profit organ procurement organization (OPO) that coordinates organ and tissue donation for all or part of the six New England states and Bermuda. The Aftercare department connects donor families and recipients after the transplant occurs
• National Kidney Registry (NKR)
  The NKR is a nonprofit organization that runs a registry that provides matching services for living kidney donors and recipients
• National Kidney Foundation (NKF)
  The NKF is the leading organization in the US dedicated to the awareness, prevention and treatment of kidney diseases
• Scientific Registry of Transplant Recipients (SRTR)
  The SRTR provides ongoing evaluation of the status of solid organ transplantation in the United States and disseminates periodic reports of scientific data to the transplant community
• The American Association of Kidney Patients (AAKP)
  The AAKP is an advocacy group founded by dialysis patients, dedicated to forming a sense of community and improving long term outcomes for patients
• National Institute of Diabetes, Digestive, and Kidney Diseases (NIDDK)
  The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts, supports, and coordinates research on many of the most serious diseases affecting public health
• Partnership for Prescription Assistance (PPA)
  The PPA brings together America’s biopharmaceutical companies, doctors, patient advocacy organizations and civic groups to help low-income, uninsured patients get free or nearly free brand-name medicines
• Transplant Games of America
  The games are a multi-sport festival event to help promote the need for organ and tissue donation. Recipients, living donors, and their families are invited to participate