Myositis

MYORISK (Environmental Risk Factors for the Anti-synthetase Syndrome)

Principle Investigator: Paul F. Dellaripa, MD

Contact: Jade Cumberbatch (nhcumberbatch@partners.org ; 617-732-5354)

Funding Agency:  NIH

Study Summary: We are collaborating with researchers at the National Institute of Environmental Health Sciences (NIEHS) to study antisynthetase syndrome, which often involves interstitial lung disease.  Scientists believe that differences in environmental exposures or differences in individuals’ genetically predisposed responses to environmental exposures may determine whether or not they develop the disease. We plan to test this hypothesis by gathering and then testing study volunteers’ medical history and exposure data, a blood test, and a urine test.   

Patient Criteria: Recently developed (within 1 year) myositis associated with interstitial lung disease (ILD)

Visit Summary: There is one study visit that will involve filling out a questionnaire and the collection of blood samples. But if we need more samples or information we may request that you return to the clinic so that we can gather more information.

Patient Remuneration: You will be sent a $100 check once all samples and questionnaires are completed and sent for review.